Logo

Search in DATA AFFAIRS

Glossary entryInformed Consent

Informed Consent

Informed consent refers to the agreement of research participants to take part in a study based on the basis of comprehensive and understandable information. The design of an informed consent must address both ethical principlesResearch ethics addresses the relationship between researchers, the research field, and the subjects/participants of the research. This relationship is critically examined against the backdrop of vulnerabilities and power asymmetries created by the research process (Unger, Narimani & M’Bayo, 2014, p.1-2). Due to the processual and open-ended nature of ethnographic research, ethical questions arise throughout the research process in various ways, depending on the research context and methods. However, research ethics does not end with leaving the field; it also encompasses issues related to data archiving, data protection, and sharing research data with participants (see, for example, ethics guidelines by the DGSKA or the position paper on archiving, provision, and reuse of research data by the dgv). Read More and data protectionData protection includes measures against the unlawful collection, storage, sharing, and reuse of personal data. It is based on the right of individuals to self-determination regarding the handling of their data and is anchored in the General Data Protection Regulation (GDPR), the Federal Data Protection Act (Bundesdatenschutzgesetz), and the corresponding laws of the federal states. A violation of data protection regulations can lead to criminal consequences. Read More requirements.