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ArticleResearch Ethics and Data Ethics

Research Ethics and Data Ethics

Overview & Key Information

This article addresses the ethical challenges in the context of ethnographic field research and data documentation.

Definition

Research ethics in ethnography involves continuous reflection on one's own intentions concerning the possible consequences of empirical research and later publication, as well as data documentation, for the participants. Data ethics, as a part of research ethics, encompasses the responsible handling of research data throughout all phases and processes of research data management. In both ethical considerations, the guiding question should always be: Can my research and its results cause harm to the people involved?

Introduction

Historical Origin

Since the 1980s, an increasing formalization and standardization of ethical requirements can be observed in professional associations and working groups in social and cultural anthropology. Corresponding ethical declarations summarize the role of researchers in terms of their responsibility and commitment.

In the United States, the first Codes of Ethics and Institutional Review Boards (IRB) were developed as a response to inhumane experiments and research in the medical and psychological fields (e.g., during World War II and the post-war period). Ethical principles from these disciplines were transferred to social science research (Dilger, 2020, p. 286).

In Germany, ethical guidelines for ethnographic disciplines began to emerge in the 2000s:

From these guidelines, the following fundamental principles can be derived:

Fundamental Principles of Research Ethics

  1. Scientific Quality and Integrity of Researchers: Researchers must adhere to legally prescribed measures of good scientific practiceGood scientific practice (GSP) represents a standardized code of conduct established in the guidelines of the German Research Foundation (DFG). These guidelines emphasize the ethical obligation of every researcher to act responsibly, honestly, and respectfully, also in order to strengthen public trust in research and science. They serve as a framework for guiding scientific work processes. Read More. This includes maintaining accuracy and neutrality (e.g., avoiding political biases or influences), preventing plagiarism and deception, and ensuring that findings are comprehensible and transparent through detailed documentation.
  2. Non-Maleficence (Avoiding Harm): Researchers should protect both the study participants and themselves. No one involved should suffer legal, health-related, material, social, or other harm from the research. This includes a conscious sensitivity to sensitive topics and appropriate anonymization and pseudonymization strategies to protect personal dataPersonal data includes: 'any information relating to an identified or identifiable natural person (data subject); an identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as a name, an identification number, location data, an online identifier, or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural, or social identity of that natural person(…)” (EU GDPR Article 4 No. 1, 2016; BDSG §46 para. 1, 2018; BlnDSG §31, 2020). Read More (see Anonymization and Pseudonymization article). Researchers should also be mindful of their own psychological and health limits, as well as those of their team members, which is particularly relevant in research involving violence or conflict zones.
  3. Voluntary and Informed Consent: Participants must be informedInformed consent refers to the agreement of research participants to take part in a study based on the basis of comprehensive and understandable information. The design of an informed consent must address both ethical principles and data protection requirements. Read More about the goals of the research in an anticipatory and comprehensible manner. They should then be able to freely decide whether to participate or not (see Informed Consent article).

These ethical principles intersect with both legal requirements and scientific-ethical considerations. They apply beyond the immediate research situation and encompass all phases of the research data lifecycleThe research data lifecycle model represents all the phases that research data can go through, from the point of collection to their reuse. These phases are linked to specific tasks and may vary (Forschungsdaten.info, 2023). Generally, the research data lifecycle includes the following stages: Read More, including documentation, archiving, and reuse.

Data Ethics in Research Data Management

An ethical approach is essential in every phase of the research data lifecycle for effective data management, and this can be summarized under the term data ethics. The Open Data Institute defines data ethics as:

„A branch of ethics that evaluates data practices with the potential to adversely impact on people and society – in data collection, sharing and use.”

(Open Data Institute, 2023)

Thus, it is essential to critically assess how one's own handling of generated data in research data managementResearch data management is aimed at handling research data in a responsible and well-considered manner. The idea is to carefully organize, maintain and process research data using specific measures and strategies. The goal is to store data long-term and make it accessible and reusable by others, in line with good scientific practice. This enables easier verification of scientific findings, secures evidence, and allows for further evaluations and analyses of the data. Read More can affect the people involved. Data practices (i.e., data generation, analysis, evaluation, knowledge production, decisions on data sharing, and potential reuse by third parties) must always be conducted in a way that prevents harm or negative consequences for participants. For each decision within these practices, possible impacts on participants must be considered, as highlighted in various articles in this portal (see also Archiving and Data Reuse).

The FAIR PrinciplesThe FAIR Principles were first developed in 2016 by the FORCE11 community (The Future of Research Communication and e-Scholarship). FORCE11 is a community of researchers, librarians, archivists, publishers, and research funders aiming to bring about change in modern scientific communication through the effective use of information technology, thereby supporting enhanced knowledge creation and dissemination. The primary goal is the transparent and open presentation of scientific processes. Accordingly, data should be made findable, accessible, interoperable, and reusable (FAIR) online. The objective is to preserve data long-term and make it available for reuse by third parties in line with Open Science and Data Sharing principles. Precise definitions by FORCE11 can be found on their website see: https://force11.org/info/the-fair-data-principles/. Read More – which were established in response to Open DataOpen data are data that are openly and freely accessible online and may be reused by third parties without restriction. This requires that they are provided with an open license (Opendefinition, 2023). Read More (i.e., unrestricted access to all data) – recognize certain restrictions on data access to protect individuals legally (see Introduction to Research Data Management, Data in Ethnographic Research, Data Protection, Rights and Licenses). However, as a key tool in research data management, the FAIR principles do not sufficiently consider ethical aspects of the data generation process (Imeri & Rizzolli, 2022).

For this reason, the Global Indigenous Data Alliance (GIDA)The Global Indigenous Data Alliance (GIDA) is a network of researchers, data practitioners, and political activists dedicated to ensuring that Indigenous groups: Read More introduced the CARE Principles in 2019 as a complement to the FAIR Principles. These principles focus more on historically rooted research contexts (e.g., postcolonial contexts) and the associated power asymmetries between researchers and participants in data management.

The CARE acronym stands for:

  • C - Collective Benefit: Participants should have access to and be able to reuse the collected data (e.g., via online repositories).
  • A - Authority to Control: Control over the representation of data should be shaped by the communities themselves.
  • R - Responsibility: Researchers have a duty to establish and maintain respectful relationships with participants.
  • E - Ethics: Ethical aspects should be considered throughout the research process, aiming to prevent harm, uphold rights and interests, and foster the involvement of the community itself.

The fundamental principles of research ethics, data ethics, and the CARE principles provide guidance and support for ethical questions and can serve as tools for ethnographic research and data management. However, in social and cultural anthropology, these ethical reflections are already well-established within academic debates and theoretical frameworks.

Research Ethics in Social and Cultural Anthropology

Ethical reflections are deeply embedded in social and cultural anthropology, as evidenced by discussions surrounding the "crisis of representation" (the so-called "Writing Culture" debate), the positionality of ethnographers, and postcolonial theoretical approaches (Dilger, 2020, p. 292). Ethnographic research is inherently reciprocal, participatory, and collaborative, with an open and flexible approach to research design. The establishment of close, trusting, and respectful relationships with research participants is an integral part of the discipline’s methodology and is therefore included in academic training (ibid.). Similarly, a respectful and considerate approach to research data should be firmly rooted and established within this disciplinary tradition.

Motivation

Firstly, adherence to ethical rules and requirements is part of good scientific practice, and failure to comply can have legal consequences. Secondly, ethical responsibility guidelines are often linked to human rights regulations. Additionally, in some countries (e.g., the United States, the United Kingdom, and Australia), positive ethical reviews must be obtained before conducting research. Checklists, toolboxes, and reflection forms can serve as self-assessment tools for ethical review.

Methods

  1. Familiarize yourself with the fundamental principles of good scientific practice as defined by the German Research Foundation (DFG) and compare them with your own research project. The DFG guidelines are summarized here: Guidelines for Safeguarding Good Research Practice. Code of Conduct
  2. Determine the relevant ethics committees for your research project, including those within your academic discipline, university, and research location. A list of ethics committees for social science disciplines can be found here (in German only): https://www.konsortswd.de/themen/forschungsethik/ethikkommissionen/
    For researchers at Freie Universität Berlin: The central ethics committee members and contact persons are listed here: https://www.fu-berlin.de/en/forschung/service/ethik/index.html
  3. For ethnographic research in ethnology/social and cultural anthropology – The fundamental principles for ethical review in ethnographic research can be found here (in German only): https://www.dgska.de/wp-content/uploads/2020/02/DGSKA_Ethik-Leitlinie.pdf
  4. The German Association for Social and Cultural Anthropology (DGSKA) provides a research reflection questionnaire, which can be completed and submitted to the relevant ethics committee in consultation with your academic advisor (in German only): https://www.dgska.de/wp-content/uploads/2020/03/DGSKA_Ethik-Reflexionsfragebogen.pdf
  5. Teaching and training materials for self-assessment in research ethics can be freely downloaded from the website of the Council for Social and Economic Data (RatSWD). The self-assessment guidelines start on slide 41 in the teaching slides (in German only): https://www.konsortswd.de/aktuelles/publikation/forschungsethik%20in%20den%20sozial%20und%20wirtschaftswissenschaften/
  6. A further checklist for the ethical self-assessment of studies is available here (in German only): https://www.fu-berlin.de/forschung/service/ethik/_media/2022_checkliste.pdf

Despite these guidelines, rules, and checklists, ethnographic research situations can present ethical dilemmas for which there are no ideal or clear-cut solutions. Such dilemmas must be assessed and addressed on a case-by-case basis (Dilger, 2020, p. 284).

Practical Examples

The following research situations are experiences of the ethnologist Hansjörg Dilger during his research in Tanzania (2009/2010 and 1999/2000).

Example 1: Research in Tanzania (2009-10)

„The first example concerns my research at a primary school in Dar es Salaam (2009–10). This school was established in the mid-1990s by the pastor of a large Pentecostal church and remains highly sought after by the urban middle class due to its promise of academic success and ‘moral education.’ During the research process, I discovered, among other things, that problematic working conditions prevailed at the school, as teachers were not given employment contracts and were not allowed to organize in unions without risking dismissal. This raised several questions for me: Should I write about these problematic findings in my research, potentially harming the pastor who had been very accommodating in granting me access to the daily life of her school? Would such a publication not also endanger the teachers themselves, who were highly critical of these conditions but already stated that they were under immense pressure? Should I avoid mentioning the school's name in later publications to prevent singling out this particular institution for criticism? After all, it was not the only school in the country facing similar issues due to neoliberal structural reforms." (Dilger, 2020, p. 283).


Example 2: Research in Tanzania (1999-2000)

"The second example comes from my field research on the experience of illness and death from HIV/AIDS in the context of rural-to-urban migration in Tanzania (1999–2000). In rural areas, I was confronted with situations where I became aware of the possible infection of third parties by HIV-positive individuals. This raised a particularly pressing ethical question regarding my own responsibility. In one case, it concerned a young woman who had tested HIV-positive after repeated illnesses in the hospital. While the healthcare staff had informed parts of her family about the result, the young woman herself had not been told due to concerns that the information would emotionally ‘overwhelm’ her. After she became pregnant and gave birth to a seemingly healthy child, she asked me for help: she wanted to take an HIV test at the local hospital, which the responsible counselor had allegedly refused to provide. It was clear that taking such a step would go against the wishes of her family, who had explicitly told me that she should not be informed of her HIV status. However, I asked myself: Could knowing her diagnosis help her prevent a possible HIV infection of her child if she stopped breastfeeding in time? Could learning about her HIV status actually bring emotional relief, as it would resolve the uncertainty she had about the persistent illnesses she had been suffering from?" (ibid.).

These examples illustrate that while standardized procedures for ethical reviews are necessary to institutionally and legally protect research participants and ensure their dignity, ethnographic research contexts are often complex and multifaceted. Research ethics questions cannot always be satisfactorily answered using ethical guidelines and regulations alone.


Example 3: Example of the application of the CARE principles

An example of the application of the CARE principles is the National Library of Australia, which emphasizes the respectful handling of sensitive content and materials in research involving Australian Aboriginal communities:

Source: Homepage of the The National Library of Australia, 2023, All rights reserved

Discussion

The following criticisms of research ethics and the increasing formalization and standardization of ethical measures through ethics committees and required reviews can be noted:

  1. Modifications to research design, which often need to be adjusted in the open and flexible ethnographic field, must undergo additional ethical reviews. This can be challenging during time- and budget-constrained fieldwork and may lead to institutional overregulation.
  2. Some ethics committees lack specific expertise in ethnographic research, making it difficult for them to assess and decide on uncertain field situations from an external perspective. Additionally, a risk-benefit assessment paradigm has been established, which contradicts the participatory approach of ethnographic research.
  3. Anonymization and pseudonymization are sometimes not feasible in ethnography for various reasons and are not always meaningful for specifically targeted topics (see article on Anonymization and Pseudonymization).
  4. Informed consent cannot always anticipate or fully ensure that research participants are fully aware of all the consequences of the research, which is often difficult to verify (see article on Informed Consent).

The ethical guidelines, reflection questionnaires, and the CARE principles serve as important reference points and provide support for research data management. However, they do not offer perfect solutions for every ethically challenging situation encountered in the field and may sometimes impose rigid regulations.

Since social and cultural anthropology is a reflective discipline, researchers have an inherent obligation to continuously engage with ethical questions – before, during, and after the research process, as well as throughout the research data management lifecycle.

It is essential to take responsibility, consult with experienced mentors, and make context-specific, independent decisions. Data ethics is inherently linked to research ethics, and continuous self-reflection should extend beyond the research setting to every aspect of research data management.

Notes

Literature and References

Citation

Heldt, C. & Röttger-Rössler, B. (2023). Research Ethics and Data Ethics . In Data Affairs. Data Management in Ethnographic Research. SFB 1171 and Center for Digital Systems, Freie Universität Berlin. https://en.data-affairs.affective-societies.de/article/research-ethics-and-data-ethics/